

A chronicle of work, life and experiences loving and serving the Zulu people in Amangwe Tribal Area (Loskop), South Africa

We went on our first home visit with Sbongile to see her patient Sbonelo was June 2007. At that point, we found his mother a shining example for others: HIV positive, but healthy and on ARVs for over a year, with a healthy week-old baby. She had taken nevarapine to prevent transmission of her disease to her baby girl.
Sbonelo, in grade 2, and also HIV+ wasn’t doing as well – his hair was badly thinning and he had bad oral thrush and sores as well as a light fever. They had started him in the process for ARV treatment, but had run short of funds to continue. We gave money for transport to the clinic, and told Sbonelo’s mother and gogo (grandmother) to urgently fetch his CD4 results, the indicator of his immune system strength and requirement for initiation of ARV treatment. As we had suspected, his results indicated that he needed to start treatment, so we wrote a referral letter to the ARV clinic at the hospital explaining that the mother had already taken the required ARV adherence training, and so her son, Sbonelo could start ARVs straight away. (Without some intervention, seemingly simple cases like this can face difficulty and delay at the hospital and/or clinic.)
With the CD4 results and our referral letter in hand, more transport money assistance in their pocket, Sbonelo and his mother left for Estcourt Hospital where Sbonelo received his first dose of ARV treatment that he’s been taking ever since. His smile brightened our day when we visited the other day: he’s doing VERY well on his treatment, the oral sores gone and shine back in his eyes.
But that’s where the good news of our last visit (March 2008) stopped. Sbonelo’s mother had abandoned him and his baby sister (now 9 months) to their gogo’s care while she went off to get married to a neighbor guy. Even worse, she didn’t just leave her children behind, but also her ARVs. This treatment for her HIV is a sensitive one, whereby a meagre 5% default rate can lead to drug resistance. The mother’s defaulting on her ARVs is a serious matter, as is the fact that Sbonelo was left to manage his own ARV treatment, without his gogo knowing how to give him his triple-drug cocktail. Xoli went through the pills with him, gogo listening on, and were impressed how much an eight year old child could remember about his pills. But unfortunately, that wasn’t good enough, for he wasn’t taking all the pills, all six different types, 100% correctly. To make matters worse, Sbonelo’s mother had left with her cell phone, the only way they had of checking the time to ensure he took the pills on time. In addition to taking the correct pills in the correct way, ARVs require 12 hour intervals in between each dose, making careful adherence much more crucial.
We closed up the visit by giving the gogo a referral letter and money to get ARV adherence at the clinic for two days in the following two weeks. We also gave a phone call to Sbonelo’s mother inquiring about her ARVs, about the wellbeing of Sbonelo and her 9 month old, and referring her to the local VCT counsellor to help her work through all the issues surrounding her HIV status. Two days later, Sbongile, Sbonelo’s HBC volunteer brought them a small clock we bought to help with their adherence. Things for Sbonelo’s health are looking up, and we have referred Sbonelo’s mother to an excellent VCT counsellor to ‘empower her’ about the importance of making her health, and her treatment adherence.
General Thembalethu Updates
I still can’t quite wrap my head around the idea that March and April bring the cold, trees turning, and an end to summer rains. Yet, the battle here is on. Summer’s here, winter’s there. Autumn on its way here, spring bringing
A Full House
If I ever thought living in a big house, a big farm mostly on my own was isolating, I couldn’t have set myself up for a bigger change. After many seasons in the former, for the past year I have been living in my friend Sofi’s new volunteer house (built in 2006). For six months, I had it largely to myself, excluding regular visits from Sofi and her two young children (Doong, aged 6 and Miya, almost 3). Since October, however, the community element has boomed. In late October, Slindile Hadebe, a now 18 year old orphaned girl who is part of the first family I met in
In January, days after Sofi returned from a visit to her family in
In addition to all the folks listed above, the other night we had a record 19 people sleeping at ‘my’ house and Sofi’s, nine of these children (most staying temporarily) under the age of twelve. After a long day at work, it’s almost enough to make one mad!
With all these people around, the sanity moments come in the quiet of the mornings, when I’m the only one up. I love sneaking outside to watch the sunlight gradually stream over the Berg, cup of steaming tea in hand, Bible in lap. Those minutes reading, in prayer and meditation on God’s word are my salvation when it all becomes too much. Gazing upon the mountains, I can’t help but be grateful for the beauty God created, for the many blessings I’ve received. And, though I’ve left off keeping you informed the last bit, I continue to thank God for YOUR amazing generosity that allows my being here, this work to continue. Please check my blog at http://hopeforaids.blogspot.com for periodic and past updates, when I don’t succeed in getting an email out.
Brief financial update…
I raised funds to cover my living expenses from April 2007 to the end of April 2008, the end of which is nearly here. Over this period, I received more than I needed ($25,000 instead of $20,000). The surplus I have put into caring for Slindile Hadebe and her two kids for the past six months, financing her going back to school, and fixing up a new house for her little family to live in.
My future plans remain somewhat foggy, as there is currently a man in my life, a South African guy, which could very likely bring some exciting changes in the next months. Nevertheless, I remain committed to supporting Thembalethu and the Caregivers, as time goes in an ever less-visible way. Xoli Msimanga has been a true Godsend to the organization in her love for God, the Carers, patients and orphaned youth. I really don’t think I could have managed so well without her expertise and way with people. She is already leading the majority of interactions with the HBC, patients and orphaned youth, all that lacks is administrative (mostly computer) training which is underway. Having her at the day-to-day management helm will help me be able to focus on other administrative needs I never get to, as well as being freer
to seek grants and other sources of funding for Thembalethu. (I’ve attached an update for more info, which I will also post on my blog in the next couple of days.)
While the remainder of last year’s personal giving will hold me over during the next month or so, and this is supplemented additional giving I have recently received, my funds for the coming year are running short. I need jut shy of $20,000 to carry me through another year. Please let me know if you are planning to change or alter your giving in the coming months. Giving continues through UPC, the details of which I will include below.
Thank you guys so exceedingly much for partnering with me in this work to bring love, life and hope to those infected and affected by HIV/AIDS in Amangwe Tribal Area. Your generosity of heart and spirit, and God’s good provision and providence makes it possible to reach out in love and grace to many needy people. Bless you!
I look forward to hearing from you!
With love,
Betsy